Tuesday, February 27, 2007

Grandmother & Granddaddy

My paternal Grandmother passed away almost five years ago and I miss her every day. She was such a huge part of my life and losing her was a devastating loss that I continue to feel.

Elsewhere in this blog I have talked about how my mom and dad dated in high school and married nine days after my mom graduated. (They divorced 18 years and five kids later.) What I haven't mentioned until now is that my mom and her three sisters were raised at the Veterans of Foreign Wars Home for Children as orphans. (My maternal Grandfather was killed during WWII.)

My beautifully southern (paternal) Grandmother took my mom under her wing and taught her everything she knew about being a wife, having babies and raising a family. My
Grandmother always considered my mom one of her "daughters" even after my parents divorced and my mom always felt my Grandmother was the mother she had never had. They had a very deep emotional bond that could never be broken. (All my cousin's still thought of her as "Aunt Betty".)

My Grandmother's husband, Granddaddy, passed away in July 1985 -- 52 years and a few days after they were married. Grandmother and Granddaddy had such a bond that we feared she would soon follow him in death, but she didn't. She continued to live in her brown house looking out over the river in the little island town until she was in her 80's. Due to declining health she became a resident of a care facility that totally doted on her. She always had a stream of visitors and we posted current photos of our families on her bulletin board.

Almost every summer, growing up, there were camping trips that included all the locals of our family tree. My dad's brother had five kids, my dad's sister had seven daughters, then there was my three brother's and sister -- just this group alone was a family reunion!

From the time I was 10 I was able to walk or ride my bike to my Grandparent's house and their door was always open. After my parents split and I moved back with my dad I would stay with them if my dad had to be out of town.

My grandparents were from the south -- Tennessee -- and moved to Michigan when my dad was a young boy. I can still hear their southern drawl in my head.

After my grandfather passed away I found myself spending a lot more time with my Grandmother. We used to have amazing conversations. She knew how abusive my father was to my brothers and my mother and she and I would try to psychoanalyze him. My grandparents did not raise my father to be such a monster. I also told my Grandmother about the abuse I suffered at the hands of my brother's. We talked about everything.

When she was became the resident of the long-term care facility I was living on the other side of the state. I called her frequently, sent her cards and drove the kids to see her whenever I could. We referred to her as Grandma-Great.

In early June 2002 I received a call from a family member telling me that Grandmother wasn't doing very good. As had been in the past, she would do poorly health-wise for a short time then things would return to normal. I had no reason to think this time would be any different but I took time off work to drive up there to be with her. The first day I was there she was still eating -- not much, but it was something. She was still talking and carrying on a conversation. The next day she wasn't eating at all and there was very, very little conversation. She seemed to doze most of the time. One of the hospice workers came in at on point during that day and I helped her bathe my Grandmother.

One of my girl cousin's, Sherry, and I got recliners and camped out on either side of her bed that night. From the moment I arrived at the facility I was showering my Grandmother with kisses -- on the cheeks and forehead. It wasn't until that night, and we turned out the overhead lights, that I realized my chapstick had glitters in it. I was leaving a lip print of glitter on my Grandmother's face! Sherry and I lay there talking to each other, taking a major trip down memory lane, and to Grandmother even though she wasn't responding. We held her hands and stroked her arms. I kept an eye on her urinary output (the cath bag was on my side of the bed) but there was nothing. I knew her body was shutting down.

Sherry and I never slept that night and early the next morning I told her to call her mom while I called my dad and my mom because this was "it". Soon there were several people gathered around her bed -- my dad was near her head on the right and I was at her left ear, my mom had ahold of her left hand when the seizures started. I was whispering in her ear that I loved her and that it was okay to go. Everything was okay and we loved her. I just kept telling her that over and over and over until the seizures stopped and I knew she was gone.

I stepped away to call my husband who had driven into town and was at a hotel nearby. I can't remember what I said but soon I was wrapped in his arms.

My husband, mom and I went to breakfast. When we got back to the facility I went alone into her room. Grandmother was still there. I snuggled up next to her and cried. I couldn't believe she was gone. I looked around the two bed room she shared with no one. All of her photographs and flowers and clothes in the closet. A short while later the funeral home came to pick her up. I placed her dentures in her mouth and helped them move her to the gurney. Every funeral on my dad's side of the family has taken place at the same funeral home. I knew the two gentlemen who came to pick up my Grandmother and I knew she was in good hands.

After they left I sat on her bed, again looking around. I was overwhelmed with grief and was thinking to myself how wrong it was that all her stuff is here but she's gone and it just should not be this way. This had been her home. Her room smelled of her but she was gone.

I wasn't sure what would happen to her stuff so I asked the nurse on duty if she had some plastic bags. I started carefully packing her clothes and personal belongings and loaded them in my car. My reasoning was that she was no longer there so her stuff shouldn't be either.

I started WWIII with my line of thinking between my dad (on my side) and his sister and her husband. When I arrived at the funeral home the next day my Uncle started screaming at me -- dropping the "f" bomb and everything. "How dare you...", "You should NEVER...", "That was NOT yours to do...". It.was.ugly. When I finally broke away from him I called my dad on his cell phone (he was on his way) and told him what happened. He was LIVID. He told my uncle that he will NEVER speak to one of his kids like that and I was only trying to help. It got uglier after that. Never once did I think of keeping anything of my Grandmother's. Even after I handed it all over to my dad, I refused.

My Aunt was in charge of distributing my Grandmother's belongings when she moved in to the long-term care facility. Originally there was supposed to be an auction and all the grandkids could bid on whatever we wanted and the funds raised would go toward her living expenses. The auction never happened. Instead, five of the seven girl cousins swooped down and split it amongst themselves. Two of their own sisters (Sherry was one of them), my two brother's and my sister received NOTHING. NADA. My dad was quite pissed -- and quite vocal -- about this.

At the funeral my cousin Sherry handed me a Ziploc bag with some of my Grandmother's costume jewelry in it. She said that was what she was given and that she kept a few pieces for herself and my sister and I could have whatever was left.

About a year later I was having a conversation with my dad about the distribution of property and told him that there was only one thing I ever wanted from Grandmother and that was the huge family Bible she kept on her coffee table. During a few visits with her I had been filling in the family tree portion of it. He had her everyday Bible and gave it to me instead. I don't know who has the family Bible.

Final thought: My Grandmother was there when I was brought into this world and I was there when she left it.

Old Journals

Over the weekend I pulled some old journals off the bookshelf next to my bed and started reading them. A couple of the journals were from the pre/post ECT period so there were things mentioned in them that I didn't remember. It always feels weird to read or be told something happened that you have absolutely no memory of. It also makes me kind of sad.

I will be recreating all the written journals here in my blog because those words are important, too. There were several entries about off-premise visits when Hunter was in a long-term care facility and a few entries during one of my hospitalizations.

The Drug Dealer

To keep things a little lively at work I refer to my psychiatrist as my "drug dealer" and my VNS doctor as my "stimulator". Makes depression sound sexier than it is.

During the short ride between my office and my drug dealer's office I inventory my brain so I give him the info he needs in a neat little package. Always the first question he asks me is "how are you doing?" Today my answer was "I feel GOOD." I told him I had been scaling back my meds and he says that's okay. He doesn't want me to drop them too quickly and I told him that I wasn't.

99% of my visits with him include medical students so he shows me off. Since the VNS device was activated he plugs in his own palm computer to check the settings of the device and show his students how it all works. My DD has been my doctor for a few years now and at one time he treated my son, too. He was the first doctor to ever react to the genetic link between my son and I and tried some of the meds I had been taking on him. He likes to brag on Hunter, too and always asks me to bring him in.

I really like this doctor because he is always thinking outside the box. He is very progressive and very in tune to new treatments coming around. He was the one who recommended I try VNS.

After my appointment was finished and I was getting my script refills another patient came in. I've seen her frequently in the outpatient offices. DD came out into the waiting area to talk to her because she didn't have an appointment. She is married to a doctor who frequently beats her. To the point of hospitalization. I think they have four kids. I found out today that she is still living in the womans shelter but because of a recent court appearance the kids are in a foster home and she needs the DD to write a letter to the court. Every time the husband finds out where she is he hurts her. It sounds like she is running out of places to go to get away from him and he keeps getting out of jail.

Today she was missing her usual Audrey Hepburn'esque sunglasses but the wound on her forehead had a while to go yet. The scar is still thick and wide -- one of the many physical proofs she has of what her husband does to her. Usually when I see her she is hiding behind those massive sunglasses but, because I'm usually sitting beside her, I can see them and they are awful. She is such a beautiful woman and my heart just breaks for her. She was crying so I touched her shoulder when I left.

Snow Rash

Saturday, my husband and I took three of our four boys snowboarding/skiing. I was feeling pretty good so I dusted the cobwebs off my snowboard and off we went. (My husband and three of my four boys snowboard, my oldest son skis and I can do both.)

I took up snowboarding late last season so I was looking forward to refreshing my memory of just how sore a body can get after four hours on it. I was not disappointed. Actually, I (and hubby said so, too) did much better than I thought I would and had a GREAT time! (Hunter, my ten-year old and I stayed on the bunny hills while my husband and two boys went to the difficult hills.)

Snowboarding is really not as easy as it looks; just in case you ever thought it did. It is quite literally a balancing act. If you lean too far forward (dig your toes in) or too far back (dig your heels in) and you'll fall in that particular direction. And to add insult to injury, whichever body part hurts the worst is inevitably the part of your body that you will land on. Last season it was my right hip/buttock and tailbone. I sported a huge dark purple bruise long after the season ended. I had to cancel modeling in two fashion shows because I could barely walk!

Hunter and I headed to the smallest bunny hill first. There is a "magic carpet" (it's like a people mover in some airports, you just stand on it) that gets you to the top of the hill so we hopped on. At the top of the hill we sat down to strap our boards on. Once we were strapped in it was time to flip our boards and our bodies over so we are laying face down on the hill. From there you dig the toe edge of the board in the snow and stand up. With a couple little hip shimmies I got the board moving. I had nice balance and was still standing when I reached the bottom. So far so good. I took one more ride down the ultra-baby-bunny hill and Hunter and I moved to the next larger (but still a bunny) hill. The cool thing about this is the magic carpet goes much further than the other hill so we will have a longer ride down.

So Hunter and I get to the top of the next hill, strap our feet to the boards and off we go. I wasn't doing anything fancy yet. I'm still a little nervous about getting my left shoulder (where the VNS device is) jerked too far backward if I were to fall. There is only so much electrical cord between the device and the vagus nerve in my neck and I don't want to jerk anything loose.

Hunter and kept with the easy stuff for a little while and when my husband showed up to check on us I wanted him to help me turn around. Up until this point I had been going down the hill either on my toes (toes dug in, facing up the hill) or with my left foot pointed down the hill. Last year I started to learn how to turn around so I can dig in my heels and slide facing down hill. I was ready for my husband to guide me through trying it again.

It's tricky to do because you left foot point the board down the hill. With the right foot, you dig the toe edge of the board in then, while starting down the hill, you dig your heel edge in and pop your right foot around. So far so good. Except the second time I tried that I turned all the way around so I was facing back up the hill and I.fell.flat.on.my.face. Thus resulting in "snow rash". I fell pretty hard smacking my nose and chin on the snow. I immediately cupped snow in my hands and put it up to my face. When I removed it there was blood. I thought it was from my nose but it wasn't. It was from my lower lip and chin. Nothing serious or broken just some pretty abrasions and a little bruising. I had the Ski Patrol put a couple of band aids on my wounds and I went back to snowboarding.

I currently the only member of my family to draw blood while snowboarding.

My boys think I'm cool. :-)

I woke up Sunday morning and every last muscle in my body was rebelling at any movement whatsoever. Even my toes hurt!

Disability Scam

This story irks me crazy!

http://www.msnbc.msn.com/id/17360272/?GT1=9033

As the parent of a special needs child we collected SSI benefits for one of the periods of his extended hospitalizations. It is unbelievable that a mother would teach her children to lie in order to collect these benefits for her children.

Friday, February 23, 2007

Musical Memories

For as long as I can remember I have tried to surround myself with music. In doing so I have created a lot of musical memories -- events in my life that have songs associated with them. Just a few notes of a particular song can launch me back to a moment in time that, then, seemed to stand still.

One song literally haunts me. The live version of "Freebird" by Lynard Skynard. The first time I ever heard this song was at the 1979 funeral of my 18 year old brother. I still remember the look of shock on the faces of several relatives as the record scratched and popped through a seemingly endless song. That funeral smell coupled with the sounds of classmates sobbing and that song echoing off the walls of a standing room only funeral home. I know that logically sound cannot echo off the walls of a space packed with people and flowers but I swear, on that cold, rainy day in April, it did. That song fits my brother to a T. He was restless and wreckless.

If I had to pick one song that summed me up, it would be this one (click to hear): "
Wildflower" as sung by Skylark.

The song that describes me currently is (click to see lyrics) "Walking Away from the Edge" by Journey. It's off their Red 13 album and performed by Steve Augeri. (As soon as I figure out how to add music I own to this blog I will upload it.)

During my first pregnancy 18 years ago I listened to Elton John's Live in Australia with the Melbourne Symphony Orchestra on a cassette tape. By the time my son was born I had worn the tape out. I loved the whole album but one song in particular stands out (click to see lyrics): "The Greatest Discovery".


Six months into my last pregnancy I went in to pre-term labor and spent a week in the hospital. By.my.self. I had a television on the wall and a radio built in to the railing of my hospital bed to keep me company. Most of the time the radio played elevator music but every now and again a song would play with a voice that mesmerized me. I knew I had heard the voice before but I couldn't place it. It wasn't until after I left the hospital that I figured out who it was. Steve Perry of Journey (Album: Trial by Fire) and the song was (click to see lyrics) "When You Love a Woman". (I am a diehard Journey/Steve Perry fan.)

Thursday, February 22, 2007

Journaling

I started this blog to chart my progress through VNS therapy and to share the bipolar stories of me and my youngest son, Hunter. For the past (almost) three weeks I have, more or less, been dipping the tip of my big toe in the water, testing it out. I want to take a flying leap into the water because I trust that the water won't hurt me. I want to commit words to cyberspace in the hopes that what I've learned or battled or struggled with might be of some use to someone else. But I'm holding back.

Ironically, I started keeping journals shortly before the death of my oldest brother in 1979. I remember thinking at the time I started writing about the trials and tribulations of my 11-year-old life, that I wanted to remember all of the important stuff. Those early journals are gone, lost somewhere on the roads of my life.

One of the assignments for my senior-year English class was to keep a creative writing notebook. The rules were simple. Every class we had to spend 15 minutes writing in it. It could be about anything, in any format and it was confidential. It could be true or fantasy. This was easy for me because I was already keeping a journal and had been for years. Initially, because our creative writing was private, we didn't have to turn the notebooks in for a grade. My teacher, Ms. Conn, simply peered around the room to see who was/not writing. As can be expected, there were kids who took advantage of this 'honor' policy so we had to start turning our journals in for a grade.

I don't remember the exact wording of Ms. Conn's comment in the margin of a page in my notebook but it changed my life.

(Junior high and high school were hell before I even stepped in the door. My three older brother's had paved the way -- and it wasn't all good. It took awhile before teacher's stopped referring to me as "so-an-so's" little sister.)

All three of my brother's had passed through Ms. Conn's class at some point in their high school careers. Everything she thought she knew about them was blown out of the water by what I wrote in my English notebook. I'm pretty sure she wasn't expecting to read about how my brother's sexually and physically abused me or about how my father physically abused them. It was because of that notebook that I started seeing the school psychologist -- and that is what changed my life.

Ms. Conn is gone now. She died on her front porch from an asthma attack shortly after I graduated from high school. I still have one or two of those English notebooks; tucked away in a box with other high school memories.

Wednesday, February 21, 2007

Tarot

I lurk around a lot of blogs and one I stumbled on tonight had the Tarot test (see below). I've messed around with Tarot most of my adult life, I even have my own deck of cards. I typically only do readings on myself but it's been a loooong time since I have. I thought the results of this online test was interesting -- especially about the meds.

I am the Moon

Hope, expectation,
Bright promises

The Moon is a card of magic and mystery - when prominent you know that nothing is as it seems, particularly when it concerns relationships. All logic is thrown out the window.
The Moon is all about visions and illusions, madness, genius and poetry. This is a card that has to do with sleep, and so with both dreams and nightmares. It is a scary card in that it warns that there might be hidden enemies, tricks and falsehoods. But it should also be remembered that this is a card of great creativity, of powerful magic, primal feelings and intuition. You may be going through a time of emotional and mental trial; if you have any past mental problems, you must be vigilant in taking your medication but avoid drugs or alcohol, as abuse of either will cause them irreparable damage. This time however, can also result in great creativity, psychic powers, visions and insight. You can and should trust your intuition.

Tuesday, February 20, 2007

Turned Up


Today I had my VNS device turned up. It is now set at .75 mAmps. The initial goal is to have it set between 1.0 and 1.25. I go back to the doc in two weeks.

My sleep is still good -- much improved prior to the VNS device. I stopped taking Seroquel two weeks ago without negative side effect. I have decreased my Celexa and Wellbutrin to half (once per day instead of twice) and I feel okay.

The newest level of stimulation is ever-so-slightly-annoyingly-painful. In addition to feeling like I have a lump in my throat I also feel a slight poke. It only lasts for 30 seconds but still it's annoying.

Comfortable Ache

http://www.msnbc.msn.com/id/17237979/

I've been in a funk today because of the above mentioned news story. I first heard about it on the way to work and as soon as I hit my desk I looked it up. Don't get me wrong, I am truly thrilled for the parents of Amillia. I just hear the "coulda, woulda, shoulda" reverberating in my brain.

My son, Alexander, was delivered at 18 weeks gestation on September 13, 1995. Amillia's story makes me wonder what would have happened if my pregnancy had lasted four more weeks. It still hurts. 11 1/2 years later the pain has become a comfortable ache.

Sunday, February 18, 2007

Skiing

My husband, my stepson and I went skiing yesterday and it felt good. It was the first time I strapped skis to my feet and took to the slopes since my VNS surgery and I did better than I thought I would. I have quite a bit of trouble exerting myself while the VNS device is active -- I feel like I'm having a panic attack and I find it very difficult to breathe so I wind up gasping for breath. During those moments, 30 seconds seems like.forever.

At one point I was trying to be funny gliding up to and slowly going over the jumps my stepson has so much fun on. He actually 'jumps', putting some air between his snowboard and the hill. I'm not quite that brave so I would just lazy over them. The second time I went over the hill I was going too fast and wound up sprawled in the snow. Laughing. My husband snowboarded to me quickly asking if I was all right. I sure was, I laughed. I'm sure the people on the ski lift above me thought I was crazy. My husband said the whole event looked painful but I told him that as I was speeding over the hill I lost my balance and sat down on my skis. When I landed on the other side I was laying flat on my back ON my skis and I had to wipe myself out to stop. My arms, legs and skis were going in every direction. I can only imagine how it looked from above.

A little while later my hands started getting cold so I opted to leave my husband and stepson to close down the place. All in all it was a great night and I'm glad I went.

Friday, February 16, 2007

Makes Sense

"Without you, I don't make sense." I heard that somewhere...a movie, maybe? Anyway, it fits my relationship with the love of my life. Without him, I don't make sense. I won't get all shmoopy by saying he's the yin to my yang or (ugh!) that he completes me (he is and he does), but I will say that I cannot imagine my life without him. We've been together almost eight years and in June we will celebrate our fifth wedding anniversary. I look back at where we started and where we are now and I am truly amazed. Stunned. There was a period of time, in the beginning, where I was not medicated and I was "difficult" to be anywhere near. Scratch that, I was the she-devil-bitch-from-hell. I had a lot of baggage. Some of it was self made but most of it was out of my control and happened long before we met. Still, for both of us, it was tough to deal with.

In March 1999 Henry moved into an apartment and in April I moved into the apartment right next to his. (Our bedrooms, we later found out, shared the same wall.) The weekend after I moved in, my ex-husband and I briefly crossed paths with Henry. Actually, the ex and Henry carried on a conversation about motorcycles (my ex was eyeing Henry's) while I chased two-year-old Hunter around the parking lot.

Six weeks later I received an email from Henry in response to my ad and I was quite impressed with what it had to say. Nothing in his email suggested he lived in the same city I did, let alone next door to me and I had only said "hi" to him in passing that day by the motorcycle. But after I sent my reply to him on Monday, May 10th, I crawled into bed and said out loud "he's my next door neighbor". (This is a totally TRUE story!)

By Wednesday I was convinced of his identity and sent him an email telling him that I wasn't a stalker but I knew where he lived, that he had a five-year-old son, and that I knew what car he drove. I was working from home this day and watching out my window for him to come home. When I saw his car pull in to the carport, I walked outside. I was shaking like a leaf the entire time. What if I was wrong? What if he's not the responder? I walked up to him and asked him if he had read his email and he looked at me kind of strange. I told him what my nickname was and his jaw dropped. I quickly scurried back to my apartment. A little while later he came to my apartment door -- and we stood in the doorway talking forever. We've been together ever since. We lived side-by-side for two years before blending our families into one home.

Every bit of Henry's first email to me was the truth. He is everything he said he is and so much more. I could not have dreamt a more perfect man for me. Which is why I made things so difficult for Henry in the beginning. I was waiting for the other shoe to drop because it always did. I figured I would push him away before he left because I was convinced that that was going to happen. I was unmedicated and that made me quite challenging. But he didn't leave. I gave him multiple opportunities to leave, I gave him reasons (I was a horrible person, he deserved better than me) -- I pushed and he rebelled. I wasn't trying to make him prove anything, but he did. Over and over. When I was manic, angry, depressed, beligerant, slamming doors, screaming. He stayed. When I ask him why he stayed his answer is simple but it speaks volumes: because he loves me. For the first time in my life, somebody loved ME for ME and everything about me. Good and bad. That means more to me than I could ever put into words.

Wednesday, February 14, 2007

Valentine's Day

I surrender! I surrender! You can't throw a cursor without hitting a story about Valentine's Day so I'll share one of my own.

I was in third grade and madly in love with a sixth grader. But he didn't know it. I was also a Brownie (young Girl Scout). Somewhere around Valentine's Day our Brownie troop had a party and we were loaded up with cards and candy and I had the brilliant idea of showing my love to this blonde, curly-headed boy (MLB) by sharing some of my candy with him. So, after the party, which was held after school, I snuck to his locker and placed a cupcake liner with conversation hearts on the top shelf. I thought I was so cool!

The next morning I stood in the doorway of my third grade classroom and watched -- in horror -- as he pulled his hat from the top shelf of his locker dumping my gift all over the floor. I was crushed!

A few years later brother #3 brought some friends home from school and I found myself face-to-face with my elementary school crush. (MLB became a frequent visitor to our home and he is still good friends with brother #2 and #3.) It wasn't until I was about 15 (he was 18), still crushing, that I told him about that Valentine's Day and what I did. He didn't even remember it!

We never did hook up -- he dated the same girl all through high school then married her -- but I still have that third-grade crush. :-)

Snow!

We finally have snow! Lots of it!

The snow warnings, calling from four to eight inches, started Tuesday afternoon and by this morning it looks like we received every single inch of it.

The highway I drive to and from work on is visible from my office window so I started paying attention to the traffic flow early yesterday afternoon. It was a parking lot until about 7PM when I decided to head home. The 70 MPH posted speed was reduced to a steady 30MPH so I made it home faster than I thought I would. Surprisingly there were no traffic accidents or cars in the ditch even though the road was heavily snow covered.

When the winter weather turns nasty in Michigan many intelligent people become extremely stupid and start thinking they are invincible. I've lived in Michigan my entire life and I drive a Jeep -- but I'm a big sissy when the snow falls. I love being able to turn my four-wheel drive on because I get much better traction, but I still take my time. I'm NOT one of "those" crazy four-by-four people.

Tuesday, February 13, 2007

Saturday

Every other weekend at my house is affectionately referred to as "a kid weekend". Two weekends a month estrogen is outnumbered by testosterone five-to-one (four boys, one hubby). And I love every minute of it. I like to think of myself as a pretty cool step/mom and I think my kids think so, too. My husband and I plan one major family activity for the kid weekends and it's something we all look forward to. The activity for last Saturday was skiing/snowboarding.

I learned to ski at Breckenridge, Colorado about twenty years ago. Colorado, as you know, is known for its picturesque mountains. I became intimately familiar with the Breckenridge mountain because I slid down it many times, usually on my face. The next day I was terribly sunburned and I could hardly move.

Michigan, on the other mitten, does not have mountains. It has big hills. My skiing skills are much improved since introducing myself to the sport and I have become quite a little snow bunny. Nothing fancy, but I can get off the lift and down the hill without falling (unless my stepson happens to be riding with me then I inevitably knock us both over) .

A few years ago my stepson, 13, decided to take up snowboarding and that has snowballed into five of the six of us learning to ride, too. My oldest son, 17, tried snowboarding once and has decided he'd rather have his two feet strapped to two pieces of wood instead of one. Last year I decided to try the board. It's not as easy as it looks! The season ended before I mastered the skill of sliding down the hill in an upright (standing) position. All I had to show for my efforts was the nastiest bruise on my right hip and the inability to walk for a week.

So Saturday we loaded up all of our equipment and the kiddies and set off to our favorite hill. This was my first ski trip since the VNS installation and second of the entire season. Because my youngest son, 10, has not yet mastered the fine art of snowboarding my husband and I had agreed in advance that we would take turns staying with him on the bunny hill so we could both ski (me)/snowboard (him).

Henry and the boys took off to the bigger hill and Hunter and I walked over to the bunny's. (This is Hunter's second season on a snowboard but his first trip this year.) I got Hunter strapped into his bindings and on the magic carpet for a slow ride to the top and I walked along side. I had been looking forward to skiing but after the first five trips walking up and down the bunny hills I decided that, with the stimulator, I just didn't think I had the breathing capacity to ski down a hill. Although I had tucked a magnet into my pocket to turn the stimulator off, I didn't use it. I could have. I probably should have. But I didn't.

The VNS device is a permanent part of me and I have to learn to live my life around it. I'm not trying to make my own life difficult, I am just trying to be realistic. Sure, it's easy to swipe a magnet across it when it activates (removing the magnet turns it back on), but unless absolutely necessary (talking on the phone), I think it's a cop out. I'm not able to pick and choose when I take my meds, why should I pick and choose when to keep the stimulator activated?

Thursday, February 8, 2007

5 Minutes

Thanks to my VNS device my life has become a series of stops and starts. Every five minutes, for thirty seconds, the device gives me a lump in my throat as big as a baseball. There is always a little lumpy warning before it kicks into gear. Most of the time it cycles by unnoticed but if I'm sitting still, like now, I feel it. Like the drugs I take, it is a constant reminder of the chemicals my brain does not produce.

Since activation on January 22nd, my sleep is consistently better because it's deeper. I still wake during the night but have little trouble falling back to sleep. When I wake in the morning I wonder if today will be the day I am lifted from the black hole I have been drowning in for the majority of my life. Will I know it when it happens? I'm not sure.

As I gather my nightly cocktail of meds I tell my husband that he is married to a legal drug addict. I tell my coworkers I have a drug dealer. Thanks to VNS I now also have a stimulator. :-) Every two weeks I am stimulated. It makes it sound much sexier than it is.

Unfortunately, stimulation consists of holding a paddle shaped device to my chest with a cord connected to a Palm Pilot type device. With a tap or two on the screen the amps are adjusted and a second after that I feel a tingle on the back of my tongue followed by a constricting lump in my throat. Thirty seconds later the stimulation stops. And I wasn't even kissed. *sigh*

I really, really, really want to wake up one morning without the blackness around my brain. I want the change to take place over night so I have a brand new day to dance through. I want to give up my drug dealer once and for all without the worry that I will slip into the blackness once again.

I want to stop living with the annoying side effects of the colorful drug cocktail I slide down my throat every.single.day.of.my.life. Have you seen my libido? I want it back. Like YESTERDAY.

Grief

I have been trying for more than eleven years to make sense of the premature birth and subsequent death of my son, Alexander. (I've already posted part of his story under 'I'm Bipolar and So Is He'.)

I truly believe that things happen for a reason but I still struggle to see how losing a son has anything to do with it. In reality, about 8 years ago, I figured it out.

My family was the epitome of dysfunctional. From a spectators point of view, our family appeared normal when in reality it was far from it. We took family vacations and attended a small church regularly. My three older brother's were athletes through and through so my parents were deeply involved in various sport booster clubs. My mom was a SAHM and our family was highly respected in our small island town community. It is what went on behind our house walls that nobody knew about. There was a lot of speculation (hush-hush) about why my mom left my dad 18 years, and five kids, into their marriage. Why one day, when my dad was at work, she packed up my sister and me in her brand new, baby blue, Chevy Nova and moved us to another city.

I remember the warm summer day in 1978 when my mom told me she was leaving my dad. I was eleven at the time. My mom, my little sister, and my three aunts were visiting my grandmother in northern Michigan. The fact that my mom, my sister and I were camping without my dad and brothers was not suspicious to me. My dad was a general contractor and it wasn't unusual for him to be away from home. My mom led me to a picnic table in the campground and told me to sit down. At the time I was thinking "I'm busted! I shaved my legs and she KNOWS!" Instead, to my blatant surprise, she told me that when we returned home to island town we would be packing our clothes and leaving my dad and two brother's, 15 and 13, behind. Earlier that year my oldest brother, 17, left high school and joined the Army.

She moved us all right. To a town even smaller (without the island) than the one she, my father and my family had grown up in. To a mobile home trailer with paper thin walls that rattled in the slightest of breezes. The new town had one stoplight, a bar and its own post office.

Our family built every house we ever lived in. About every four years we would spend our summer vacation knee deep in sawdust, pounding nails and erecting walls. The home we were leaving was almost brand new. We had moved into it the summer before. My sister and I shared a room and this was the first house I lived in where I remember having an active part in selecting paint, wallpaper and carpet for it. (Baby blue carpet/paint, blue flowered wallpaper.) Our curtains were custom made.

From a chocolate brown, four bedroom, 2,000 square foot home to a two bedroom trailer. From an island town where we knew everybody and everybody knew us to a trailer park where we knew no one. The only consolation, if you can call it that, was that my aunt, my mom's sister, and my cousins lived in a house at the bottom of the hill. To christen our new "home" that first day, I collapsed on a pile of blankets and sobbed my heart out. Shortly after that there was a knock on the door and several kids from the park offered to give me a tour of our new surroundings. I dried my eyes and took them up on the offer.

My mom had already lined up a job as a housekeeper in a hotel for next-to-nothing wages. I think she told me later that that job paid her something like $1.90 an hour. My dad wasn't paying child support but she managed to support the three of us on that pittance. Even now I stand in awe of her.

That fall I started sixth grade at the middle school in that tiny little town. My dad figured out where my mom had taken us and one day, while my sister and I were at school, he showed up and tried to choke my mom. He had told her repeatedly while they were dating and especially after they were married that if she ever left him he would kill her. He never bothered her like that after that.

I don't remember the frequency but I do remember my dad, driving his white pickup truck, would pick my sister and I up and take us for a visit to "his" house in the island town.

Three months later, over Christmas vacation and leaving my little sister behind, I moved back to island town. Back to my baby blue bedroom, back to the kids I grew up with. Right back into the lions den that was my home. I knew what to expect because it was familiar chaos. I hate my dad for what he did to my mom and my brother's. I hate my brother's for what they did to me.

In January, 1979, my oldest brother turned 18 and was given an honorable discharge under dishonorable circumstances from the Army. He went AWOL so they kicked him out. The military really frowns on that. I still have a letter he wrote to his commanding officer explaining what we now know to be ADD as his reason for going AWOL. He moved back into the chocolate brown house, into his black carpeted bedroom with a mural of a tropical island on the wall. He went to work for my dad as a carpenter. He fought regularly with my dad.

Apparently, in the Army, he was part of a crew that built and subsequently blew up bridges. He hadn't been home long when he decided to show his friends how to make a bomb. It blew up in his face and singed his eyebrows and eyelashes. His face was slightly burned and he had difficulty opening his mouth so his girlfriend and I had him drinking from a baby bottle. Mostly because he let us. As much as I hate him, the picture in my head of that night still makes me laugh.

On the evening of March 28th, my oldest brother and my father had a huge fight over the use of the family car that night. My dad told him no, my brother insisted, punches flew. My brother landed the final punch to my father's eye, breaking his glasses before he slid behind the wheel of the car and drove away. The last words ever between father and son -- the jr. to his sr. -- were in anger.

Early in the morning of March 29th my dysfunctional family was flipped upside down. It was spring break and I had a girlfriend spending the night. Instead of sleeping in my baby blue bedroom, we slept on the family room floor in front of the stereo because we thought it was cool. I awoke in the wee hours of that Thursday morning to hushed voices coming from our kitchen. I peeked around the corner and after recognizing the faces of several adults peering back at me I went back to sleep. Everything was right in my dysfunctional little world.

Later I was awakened by my mom and dad. My mom? Here? With my dad? They walked me into our living room with the pale shades of blue carpeting. They sat me in the green chair in front of the bay window and knelt down in front of me. They had something to tell me. My brother was dead. I started to cry. They left me crying and staring out the window at the rain to go upstairs and tell the boys. Not long after that I woke my friend and told her what happened and she went home.

Later I would find out the details. At 1:30 that raining morning, after barhopping with friends, he slammed my dads car into a tree. In front of the church we grew up in. In front of the church he was baptised in. My dad had to drive to my mother's house and tell her. She fell apart in my father's arms, pounding on his chest.

We buried my brother five days later in the rain.

In 1999 I finally figured out why Alexander passed through my arms in 1995. In grieving his death, I finally grieved my life. All the abuse my father doled out to my mother and my brother's, all my abuse at the hands of my brothers. I finally let it all go.

Time does not heal the pain. Instead, the pain of losing Alexander has become a comfortable ache. He will forever be my angel-baby.

Wednesday, February 7, 2007

Chocolate

In addition to my treadmill mocking me, I have a half-eaten bag of (frozen) caramel Kisses in my Jeep leftover from last week.

I love chocolate! I crave chocolate when I have none and I don't when I do. Figure that out? I'll have to remember to take the bag into the house tonight for my husband and the kids to fight over.

Monday, Monday

On Monday the doc turned the stimulator up a notch from .25 to .5. I still feel like I have a lump in my throat and now when it's active my voice gets hoarse. My husband says I sound 'creepy'. I think I sound creepy, too. I finally realize why the magnets I received are so important. For instance when I'm talking on the phone. I just place the magnet near the stimulator and it shuts it off. When I take the magnet away, it turns back on. That's even creepier!

The VNS doctor asked me how I was doing and I told him I was sleeping better. He wanted me to describe my mood to him and I told him it was "black". I still think of suicide -- mostly to stop the demons in my head. They are so intrusive. He said the better sleep is encouraging. As is the reports he is receiving from his other patients who have had the device longer. I patiently wait.

Being back at work has been exhausting. I'll continue working part-time for a few more days. Just thinking about working full-time is overwhelming. I got used to doing next to nothing all day except sleeping and watching tv -- brainless activities. My workload in the office ebbs and flows so sometimes I'm crazy busy and other times I'm trawling for something to do.

Also on Monday I returned to Jenny Craig. Before I went on medical leave I found the program to be quite successful -- I lost more than 20 pounds. During my medical leave I wasn't focused and took a break from the program so I could stuff myself silly. And I did. I weighed in at 191 pounds. On my 5'9" frame it doesn't look too bad, but obviously my clothes no longer fit. So I had to dig into the pre-Jenny Craig box of clothes to find something to wear. I know I should be depressed about this but I'm not. I knew what I was doing everytime I put something into my mouth. I have nobody but myself to blame. Being in the office is an advantage because I can't sit around eating all day.

My treadmill is mocking me. I haven't used it in more than three months and it's just standing there collecting dust. It's the elephant in our living room so I can't avoid it. Yeah, baby, I'll be reacqainting myself with you. I also plan to start walking again at lunch.

It's been bitter cold the past several days here in Michigan. The kids had two days off of school because it was so cold. The temperatures are slowly warming up. Well as warm as you can get in the middle of winter in Michigan.

Time to get my youngest kiddie on the school bus. Have a great day.

Friday, February 2, 2007

Carrie 111

  1. My astrological sign is Taurus.
  2. And I'm stubborn.
  3. I'm also strong-willed.
  4. I freely admit when I'm wrong.
  5. Even to my kids.
  6. My nickname is "Pickles Annie".
  7. My dad still calls me "Pickles".
  8. Or "Annie".
  9. Usually it's "Annie".
  10. My dad and grandfather gave me the nickname.
  11. Because I love pickles.
  12. To the point of making myself sick.
  13. I have a jar of sweet pickles in my refrigerator.
  14. I am the fourth child of five.
  15. After three sons.
  16. I have a younger sister.
  17. We hated each other growing up.
  18. We get along now. When it matters most.
  19. My parents dated in high school.
  20. They married nine days after my mom graduated high school.
  21. My oldest brother, the first grandson, was born 7 months later.
  22. My parents are divorced and remarried.
  23. To different people, silly!
  24. Each second marriage has lasted longer than their first.
  25. By 3 years (dad) and 4 years (mom).
  26. My oldest brother died in a car wreck when he was 18.
  27. I was 11.
  28. It was the first time I saw my father cry.
  29. One of my brothers and I graduated from the same high school as our parents.
  30. I graduated 25 years to the day and date after my mother.
  31. I went to my five year reunion.
  32. I learned all I needed to know and have skipped the rest.
  33. I was a cheerleader for football and basketball.
  34. I was popular and hung with the 'jock' crowd.
  35. I had my first son, the first grandson, when I was 22.
  36. He weighed 10 lbs. and was 23 inches long.
  37. Matthew is 18 now and leaves for Air Force BMT on October 9th.
  38. Matthew stands 6'5" tall -- and he's still growing.
  39. He weighs 150 lbs soaking wet.
  40. He has a genius IQ.
  41. I had my second son when I was 26.
  42. Connor is almost 14 and lives with his dad.
  43. He's a Quaterback and a Pitcher.
  44. Connor and Matthew have different fathers.
  45. Each has a younger brother and a younger sister, in that order.
  46. Alexander, my third son, was born and died in 1995.
  47. The pain NEVER subsides, it just becomes a comfortable ache.
  48. My youngest son, Hunter, turned 10 this year (February 2nd).
  49. Alexander and Hunter have the same father.
  50. I have a step-son.
  51. His name is Jake. He's 14.
  52. He lives with us.
  53. And Hunter.
  54. Jake played the drums in the school band.
  55. He also played football.
  56. Henry is my fourth -- and final -- husband.
  57. That's my final answer!
  58. We met via Yahoo!
  59. We've been together almost 9 years.
  60. I posted an ad; he answered it.
  61. We lived next door to each other.
  62. And we didn't know it.
  63. Well...I did. Sort of.
  64. Call it fate.
  65. We met because he had a 'crotch rocket'.
  66. No, not THAT!
  67. A motorcycle!
  68. A red Ninja.
  69. It was stolen two weeks after we met.
  70. While we were re-roofing his parents house.
  71. In upstate New York.
  72. In 100 degree heat.
  73. Seriously.
  74. It was the first time I met his parents.
  75. The neighbors noticed the chick on the roof.
  76. I wield a mean air nailer!
  77. His parents were impressed.
  78. The Ninja was brand new.
  79. Henry didn't have the title yet.
  80. The insurance company paid the claim.
  81. I called around town to find an identical replacement.
  82. I found one. He bought it.
  83. 3 years later, this Ninja was stolen.
  84. From the same complex!
  85. And it was chained to a post.
  86. They left a small piece of the cut chain behind. (Yeah buddy, rub it in!)
  87. I think my husband still has it.
  88. We haven't replaced the bike yet.
  89. We own a yacht.
  90. It used to sleep six.
  91. But the kids grew.
  92. We keep it near one of the Great Lakes.
  93. My husband and I are certified scuba divers.
  94. We have driven our boat to Cedar Point in Sandusky, Ohio several times.
  95. We celebrated our 5th wedding anniversary June 30th.
  96. We have two Jeeps -- "HIS GP" and "HER GP".
  97. We have a wireless network in our home.
  98. My husband is an Electrical Engineer (and techno-savvy).
  99. We have three desktop and three laptop computers. (Not including ones used for work.)
  100. We have three X-Boxes, two X-Box 360's, one PSP, a DDR and a couple of Gameboys.
  101. I'm techno-savvy, too.
  102. I have an ink pen that is part Swiss Army knife. It's blue.
  103. I started snowboarding last year.
  104. I don't quite have the hang of it yet.
  105. I broke my left elbow on St. Patrick's Day 2007.
  106. I do have the hang of downhill skiing, however.
  107. I model formal/bridal gowns part-time.
  108. I have played paintball with my husband and boys.
  109. Twice.
  110. So far. :-)
  111. I turned 40 this year. It hurt.

ECT's

Having tried as many different drugs as possible ECT was offered to me while I was an inpatient. During this particular hospitalization my husband and I did not have enough information to make an informed decision but -- the doctor had other plans. He was going to give me ECT if he had to tie me down to do it. At least that's the gist of the conversation he had with my husband -- but he didn't know who he was dealing with. My husband quickly checked me out of that hospital. That was the first, last and only time I ever entered that particular facility.

After that, my husband, Henry, researched it inside-out, he, and I didn't know it at the time, reluctantly suggested I try it but at a different facility. So I did.

From September to November of 2004 I had 11 ECT's. The first few were done while I was an inpatient and the rest were done outpatient. The benefits were short-lived and six months of my life -- my memories -- are gone. That is really the only negative thing I have to say about the ECT's, erased memories and my husband starting sentences with "you probably don't remember this, BUT...". Whether or not I have viewed a particular movie gives us some comic relief though. I'll be channel surfing, a movie will catch my eye and the conversation goes something like this:

Me: "Have I seen this movie before"
Him: "Yes."
Me: "Was it in "carrie-mode"?" (meaning, did I stay awake to watch the whole thing?)
Him: "No."
Me: "Did I enjoy it?"

The day of an ECT went something like this:

I would be taken a staging area outside the treatment room where I would don a gown, drink an anti-nausea cocktail and be hooked up to an IV with a muscle relaxer. Once I was wheeled into the treatment room I would be sedated, the treatment would be given and I would wake up in the same staging area I started from with barely a headache.

If I knew then what I know now, would I still do it? Yes. Would I recommend it to other people? I would not recommend this, NOR condemn it, one way or the other. It is my belief that each patient is different, each history, each circumstance is unique and it is up to that patient to make a decision they feel is right for them. At the time, ECT was right for me.

By the way, I have NEVER seen "One Flew Over the Cuckoos Nest".

Toxic People?

I have survived all the toxic people in my life. I think. I realized that just because I am related to somebody doesn't mean I have to like them and it doesn't mean that I have to spend time with them. Because some members of my family I don't and I don't. It took a lot of therapy for me to draw a line in the sand and say "NO" -- and mean it. Not only *mean* it, but without wavering even a breath.

There have been some toxic people in my life that I didn't think I would survive through. My third husband (DH - and it doesn't stand for *darling husband*) and his parents, for example.

His is the relationship I fell into on the heels of my second divorce. A relationship I had absolutely no business being in. In the beginning it was all wine (not literally) and roses. He said all the right things, did all the right things, blah blah blah.

Our first fight, he ran to mommy. Our second fight, he ran to mommy. Our third fight, and so on. Red flags? Nawww...

At first I adored his parents. They welcomed me in to their home and treated me like the daughter they never had. When I became pregnant with my third son, their first grandchild, mommy bought everything we needed for a nursery. When I miscarried my son, mommy drove me home from the hospital. My son is buried upstate Michigan on their private property. We were all grieving.

When I became pregnant again, with my fourth son, they took care of me. DH's father drove me to all my doctor appointments. DH was essentially useless. Adding to the stress of my bed rest, he (DH), surprise, surprise, couldn't hold a job. He never could. The slide into splitsville picked up speed and the in-laws were choosing sides. I wasn't one of them.

Six months into this pregnancy I wound up in the hospital, in pre-term later, where I stayed -- alone -- for a week. I had no visitors -- no DH, no parents, nothing -- and I was scared to death. DH's mommy truly -- I kid you not -- thought SHE would be the one to name our child. She even had a nickname at the ready. Suffice it to say she was less than thrilled when I told her, in no uncertain terms, that DH and I would be naming this child. The great-divide widened.

Shortly after the birth of our son, Hunter (who, by the way, turned 10 today) I noticed *some* things. I started catching DH in lies about where he was going. Strange codes were showing up on his pager. Things weren't making sense.

I traveled for my job at that time and I would come home to a spotless house, clean sheets on the bed...my radar was up. The jig was up. He was sleeping a woman who lived two doors down from us. I was the only person in the apartment building who didn't know what was going on.

Things went from bad to worse in a nano-second. I, being stubborn and strong-willed, attempted to fight for my marriage. I confronted him, I confronted her, I confronted them together. I told her to stay away, she said she would. She didn't. He said he would stay away from her. He didn't. He would leave the apartment, hide his truck and go to her house. Mommy and daddy CONDONED his behavior! They encouraged it! Even NOW that astonishes me.

One night, it came to a head. My son and I went to visit my sister and we set a trap for him. I did what he did. Leaving my son with my brother-in-law, I hid my car and knocked on her door. I caught him at her house -- both looking like they had just rolled out of bed. Again. I told him he had five minutes to clear out of our third-floor apartment or his stuff would be on the lawn . He didn't believe me. My sister and I ran to my apartment, locked the door, and I started launching his stuff off the balcony. All his stuff was fair game. (I swear, if I could have figured out to lift the huge console tv over the rail, it would have gone, too!)

I was heaving stuff over the balcony as fast as I could all the while shouting sailor-blushing obscenities at him. Our apartment building backed up to a densely populated, kid-friendly, subdivision and the police were called. There was a knock on the locked door. The conversation went like this:

Cop: "Mrs., could you open the door please, it's the police?".

Me: "Sorry officer, but I am not unlocking my door. Can I help you with something?"

Cop: "Uh, yeah, we received a couple of calls about a disturbance, could you open the door please?"

Me: "Sorry officer, but I'm not opening the door." (I knew if I opened the door I would probably be carted off to jail!)

Cop: (obviously flustered) "Well, I have to ask that you stop shouting and throwing things on the lawn, can you open the door?"

Me: "I'll stop shouting and throwing things on the lawn."

He showed up on the lawn begging me not to do this. "We can work this out"...yada, yada, yada. Sorry, buddy, your time is UP. Stupid me, I allowed him to yo-yo me back and forth for a little while longer. He wanted to save our marriage; he gave her up...and I believed him.

After I emptied my apartment of his things my son and I spent the night at my sister's. The next morning I hid my car and returned to the apartment. I had already had the locks changed but I wanted to see if his stuff was still on the lawn. Most of it was gone and while I was hiding in the apartment daddy and DH showed up to clean the rest of it up.

Then one day, I moved to the other side of town. The day after moving he brought my son home to me, he almost sucked me in again. He batted those big brown eyes at me, and gave me that charming smile and he ALMOST had me. ALMOST.

While at my house he called mommy. This was after we *supposedly* reconciled. And you know what? He wouldn't tell his mommy where he was! He lied to her! I remember vividly walking away from him shaking my head and saying "never again". When he finished the call, I walked to the door, opened it and told him to get out and stay out.

Jen

I dodged a phone call tonight (caller id -- blessing or curse?) from a gal who was my roommate during my last hospitalization in November. She didn't leave a message and I don't know if I should call her back. She, Jen, is a very sweet girl who is schizophrenic and a cutter. Jen was the perfect roommate and we promised to keep in touch after our release. I've talked to her once since then.

Like me, Jen has a *true* support system consisting of one or two people so I'm pretty sure she is reaching out for help. I just don't know if I can handle the weight of her problems on top of my own. I am really conflicted as to what I should do.

Hospitalizations are a cross between humbling and humiliating. On the one hand, you're all there for basically the same reason -- mental health care. On the other hand there is no privacy and as hard as the staff tries, they are given no choice but to leave you with little dignity.

I have met some pretty interesting people during my inpatient stays. I have had roommates from hell and have met people who have much bigger problems, in my warped view, compared to my own. Like Jen. Then there are other patients who are simply frightening.

Jen is 30-ish, a newlywed and childless. She hears voices that tell her to inflict gaping wounds on her arms. The voices have been trying to kill her for a long time now and for whatever reason, or in the grand scheme of things, she has survived. She's a very pretty, small woman and wears her hair in a 20's style bob. Without a blowdryer or curling iron she managed to keep her hair looking neat and tucked under in the bob kind of way. I would tease her about that. Her complexion is very pale and her hair is coal black -- a loud contrast to her soft-spoken demeanor. I'm sure it was due in part to the cocktail of drugs she was on; her speech was slow and her movements slight. She slept a lot.

Her husband was there at every available visitation and they would sit face to face kind of wrapped around each other whispering in the others ear. Just like my husband and me.

Jen and I became a team -- we ate together, sat next to each other in group and kept the other company when we couldn't sleep. I gently leaned on her and she leaned on me. We were in it together. Flustered with the ho-hum way of things in the "art" therapy group, Jen decided to liven things up by drawing a woman's naked leg with sperm en route to the vagina. She stated this plainly, loud and clear. She wasn't ashamed or shy of her artwork and the room burst out laughing. Our teachers -- all nursing interns from Wayne State in Detroit -- were visibly flustered by all of this and rendered speechless. Jen and I whooped and hollered all the way back to our room and Jen gave me the picture to keep. My picture was sedate compared to hers, I drew the sailboat my husband and I will be retiring on.

VNS - Part 2

I have been dealing with depression for most of my life. I was officially diagnosed at the age of 18 and started taking antidepressants. I turn 40 in May. I have what is known as "treatment resistant depression" (or TRD) and started a new form of treatment this year. I have been on (and off, and on and off) antidepressants since then.

I have tried suicide (OD) three times. I have been psychiatrically hospitalized more than 10 times since 1995. I have had 11 elctro-convulsive therapy (ECT or "shock") treatments.

I have four sons and a step son. I miscarried one of my sons in 2005. I have the best husband in the world. (Really!)

I have been seeing the same psychiatrist for about 5 years. Last year he recommended I look into VNS and I did. On January 8th the stimulator was inserted in my chest and connected to my left vagus nerve. On January 22nd the stimulator was activated and now goes off every five minutes for thirty seconds.

The stimulation is painless, although it feels like I have something stuck in my throat. (The vagus nerves (there are two) run the length of your body -- from the cranial nerve and touches all your organs.) I have two inscision sites -- one to the left of, and beneath my left collarbone (where the simulator is) and one above my left collarbone where the wires are connected to the vagus nerve in my neck. (Which is why it feels like I have something stuck in my throat.) When the stimulator is activated I feel pressure in my throat.

I have a lot of hope for this treatment but I know I have to be patient. Some patients see results early in the treatment, others can take years. I hope I'm in the former group and not the latter. I am part of a registry with Columbia University and will be tracked for 5 years.

Falling asleep and staying asleep have always been problematic for me -- even with meds. Since the stimulator has been active I have getting some good REM sleep because I'm dreaming. I haven't had dreams in forever! It feels good.

My state of mind is all darkness right now. I see everything in shades of gray. I picture the VNS to wash over me in full color. I hope I am not wrong. I have no energy and was on paid medical leave from my job since November 2006, I went back to work yesterday. Will I survive? In addition to having the best husband in the world, I have the best employer in the world, too. Seriously. I am truly blessed.

I hate feeling like this. I have felt like this for so long that I don't know how to feel any other way. I am tired of faking the smiles and sunshine and just want a way out of this torture. Suicide is still on my mind but I have made a promise to my therapist and psychiatrist that I won't do anything stupid. I have made the same promise to my husband. It doesn't mean I don't think about it, because I do. Every day.

I'm tired of taking pills that don't work but if I don't take them I am much worse off. What little function I have bottoms out totally. So here I am -- a legal drug addict. :-)

Loser Magnet

I have been such a loser magnet that I am on my fourth marriage. And I finally got it right!!!! Instead of living with the losers, I married them. Except for my current husband who is the absolute best! (Always the bride, never the bridesmaid.)

It took a lot of therapy for me to realize why I was choosing guys who treated me horrendously. It turned out to be quite simple: I was creating my own chaos.

My parents divorced when I was 10, my oldest brother died in a car crash when he was 18 and I was 11. I moved back and forth between my parents several times. The list goes on and on...

My life growing up was complete, utter and total chaos. I attracted guys who enjoyed the drama of my messed up life and fed into it. Boy did they ever!

I expected to be treated badly, and I was. In spades.

One day, after my third marriage ended, the light went on. Okay, it was pretty dim at first, but it was a light nonetheless.

When my current husband and I got together I didn't know what a "good" relationship was. I had absolutely no idea. He was patient, kind, respectful, considerate....all the good things I had only read about. I didn't know how to handle it. I fought him every day, waiting for the other shoe to drop. In the beginning, when I felt he was getting too close and I was uncomfortable, I would create some sort of drama. I "knew" he would eventually leave because that is what always happened. At least that's what I told myself. I did my best to push him away, but he hung in there. I created my own chaos every chance I could because that is what I KNEW. I was COMFORTABLE in the chaos. It felt like home. And that was the problem. IT FELT LIKE HOME -- and it was time to MOVE!!!

I had to STOP creating chaos for our relationship to grow. I had to trust all the wonderful things he was telling me we could do and be together. I had to let go to finally fall in love and be loved in return. Really, honestly and truly, loved for me. Not the "drama" of me.

I'm Bipolar and so is He

I’m a bipolar woman raising a bipolar child. Sometimes our moods swing in opposite directions, sometimes our moods swing together and I depend on my husband, Henry, to keep things together. Not an easy task – to say the least.

I can’t remember a time when I didn’t know there was something wrong with me. I was in junior high school the first time I sought out a guidance counselor and the visits continued until I graduated high school. I would not have made it without help. I thought of suicide more than once, but somehow managed to stay on top of the earth instead of buried beneath it. After I graduated I continued therapy with a community agency and this is when I was given medication for the very first time.

My childhood was upside down. Back then I blamed my parents equally for the chaos and abuse. I have too many memories of my father’s wrath and my mother’s silence. I have too many memories of my brother’s poor judgment and painful choices. Seeing the purple marks on my body and remembering their violation of my core.

I would like to say I know why all these things happened, but I can’t. I’ve heard the denials and the lies – and received compassion from an unlikely sort. The one person I thought would lose control rallied around me instead. Try as I might, I am unable to think of the triumphs without a black cloud hanging over them. The darkness is buried deep in my soul, along with pain, hatred and betrayal.

I no longer feel the losses of my childhood as deeply as I once did. I have been able to pack them away in a corner, like winter clothes. Or maybe they packed themselves away over time, because I grew stronger and became wiser.

I stopped blaming my family a long time ago, simply because I no longer wanted to be a victim. They no longer controlled my life because my life belongs to me. They did the best they could with what they had.

I finally took responsibility for my actions and reactions. I try to admit when I’m wrong and take ownership of my mistakes (and there have been many).

For as wise as I have become over the years, suicide is still in my thoughts. I have tried to end my life more than once, and I’ve had my share of psychiatric hospitalizations.

I was clinically diagnosed as bipolar in my late teens, early twenties. I have been on and off medication and on and off – ever since. I am currently on medication but I really want to be off. I want to stop taking pills that control my brain and (try to) regulate my emotions. Sometimes I think I don’t feel deeply enough and other times I’m in over my head. I can’t find the middle – and I can’t cry. Literally, I cannot cry.

My head hums busy-ness and my thoughts are scattered. I am reaching out but I don’t know what I’m reaching for. Writing this is quite difficult because I am unable to write down what I am thinking at the time I’m thinking it. I have to keep backtracking, rewinding my brain, and I keep going round and round.

I feel lonely, but I am far from alone. I have an incredible husband and four sons that make me smile. There is a deep feeling of unsettled and I have no idea where it started.

I also see my parents in me, and their inability to connect with me. I see it in my inability to connect with my boys. I feel like I’m standing on the sidelines of their lives, but I truly want to be in their game.

Being bipolar clouds my focus on the people who need me most. I have missed the first steps and loose teeth of one son. I missed a kindergarten graduation and the first day of high school of another. My youngest son lost all of his baby teeth while hospitalized. They were given to me in bright orange biohazard bags. I have missed teacher conferences, soccer games and school pictures.

My youngest son has missed more than half of his life to the illness we share. He’s missed more school than he has attended.

I think sometimes I need him more than he needs me. He manages to bring clarity and distraction. He gives me the ability to see a different side of our illness.

Once we were hospitalized at the same time – 30 miles apart. I felt helpless and hopeless and wanted out of this life so I tried to sleep forever again.

I’m good at being an advocate and champion for my son, but I fail myself.

Right now I cannot put one foot in front of the other and I am on autopilot. I know this is no way to live but I cannot have the alternative. I want to run and hide but I cannot go where I want to go. I am shackled to a world I want to leave behind.

After a 68-day hospitalization, Hunter came home. I pray this is the last hospitalization for a long, long time. I know there will be more eventually but for now I will enjoy the present.

UPDATE: Three months after his release he was re-hospitalized. This time his stay was 206 days. He missed Halloween, Thanksgiving and Christmas – we celebrated at the hospital but it was not how it should have been.

Hunter has been home, this time, for 12 months. Things are going reasonably well. We no longer use daycare and I have had to use FMLA to care for him. We are currently waiting for staff to be hired through community mental health so I can resume working a full-time schedule; something I long to do.

Hunter has good days and bad days and we just roll with them the best we can. He has not threatened to kill me recently and the times he bangs his head on a hard surface are fewer and farther between. He is still easily frustrated and transitions throw him for a loop – but he’s home. Where he should be.

I can count the number of holidays Hunter has missed and it makes me undeniably sad. Will he look back at his childhood and bear a grudge against me for the choices I made for him? Will he become an enraged young man and lash out at me for keeping him locked up? There are so many questions I wish I knew the answer to, but only time will tell me what they are.

I admit I have always been apprehensive about him coming home – actually I have been downright terrified. We have been down this road before so what will make this time different? How long will the honeymoon last this time? It lasted ten days before his first aggressive behavior reared its ugly head. At least this time he didn’t start it. One more episode of his physically aggressive behavior and he will be discharged from yet another daycare center. Check.

I look at him and I wonder how he will ever make it to adulthood. His fury and rage scare me; his strength astounds me. The words that come flying out of his mouth always catch me off guard and I wonder how we’ll make it through the day.

Getting to this point has not been easy. In fact, it’s been downright difficult, frustrating and extremely painful. Although I am bipolar, it in no way prepared me for raising a bipolar child. The doors I’ve had to force open; the hoops I’ve had to jump through, never letting ‘no’ stop me. Sometimes I wish I had the same dedication to my own fight. There have been many times where I could not put one foot in front of the other but I have been blessed with a man who will step in and fight the fight for me. Relying on somebody to balance me out is a first for me. I have never, ever relied on anybody in this way and it took a very long time to accept it as a good thing.

Treatment of any sort has always been difficult for me. I continue to go through periods of time where I stop seeing my therapist and I try to wean myself off the medications and go it alone. I have found that I am able to go long periods of time without my therapist, but I cannot function without the drugs. I know, I KNOW, that stopping and starting medication sets me further back each time I do it, but I hold on to the hope that maybe I can give it up altogether. At least I think I can. I recently requested the different types of medication be reduced and they were. Now I’m not sure if it was such a good idea.

12 years ago I hit bottom so hard I wanted to die. I had recently left my second marriage – and my ten-month old son with it. I sent my five-year old to live with his dad because I knew exactly where I was headed. I knew I could not take care of myself and I had no choice but to admit that I could not take care of my kids either.

The crash took three months, and then I swallowed a bottle of pills. When I woke up the next morning I drove myself to the hospital. A nurse put me in a room where staff quickly removed everything that wasn’t bolted down. I learned later that this is standard procedure for someone trying to commit suicide – they want to eliminate anything that could be used as a tool for death. Several hours later I was escorted to the psychiatric unit where I stayed for two weeks. I walked into a completely different world and I shut down.

When I wasn’t in group therapy or recreational therapy I sat in my room or I worked on a jigsaw puzzle. I remember not talking much to anyone. I was utterly lost – and I was completely alone. The doctor adjusted my medication and when I proved to them I was no longer a danger to myself they let me go home. I took a leave of absence from my job and continued outpatient therapy, even though I hated the doctor and talking to a clinical social worker wasn’t working for me. I just wanted to be left alone.

I immediately fell into a relationship that I had no business being in and the next thing I knew, I was pregnant. At the same time I was given supervised visitation, every other weekend, with my boys but it wasn’t enough and I wasn’t strong enough to ask for more.

Eighteen weeks into the pregnancy I went in to pre-term labor and it was determined that I had passed the point of no return. I could allow the labor to continue on its own or I could have it induced to speed it up. How does one make a decision like that? It is inevitable that the outcome will be tragic and I have to decide how to do it? Fast or slow? Am I in a hurry to hold my dead son – which I truly thought he would be delivered that way? It was a shock to all of us that he was born alive with a strong heartbeat. Our little warrior we called him. Had the pregnancy continued for a few more weeks would we be in the same situation anyway?

After I made the decision to induce labor – and the doctor I had at the time I had known for several years so he knew my psychiatric condition and the one thing I always respected about him was that he told me like it was. He didn’t mince words or tiptoe – he gave me his honest, professional, and sometimes personal, opinion – I called my sister. I didn’t tell her exactly what was going on, just that things weren’t looking very good. In that short conversation, later, she said she knew something was terribly wrong and drove more than an hour to be at my side when everything fell apart.

I miscarried and fell apart all over again. My son lived in my arms for five minutes but the grief goes on and on. I was in such profound shock that when my boyfriend, standing next to the priest, turned to me and said “Alexander Lee. I named him Alexander Lee” all I could manage was a nod.

Never before had I hurt so deeply and completely than the day I lost my son. Losing him was another blow to me and I told myself it was my entire fault. I had already given up two of my sons to an illness I did not understand and now I had to bury a child. I truly believed my life was over. Twelve hours after giving birth I was discharged and because I had been driven to the hospital in an ambulance, wearing only a shirt, I asked a friend to bring me pants and shoes and another friend to drive me home. As I was getting dressed I realized I was given maternity pants – and no shoes. I remember standing outside an entrance to the hospital, waiting for my ride, holding on to pants that were too big and hospital socks on my feet. I was standing in sunshine underneath a bright blue sky. It was fall and all the leaves had changed – and I was leaving the hospital without my son. I was no longer pregnant and my arms were empty. This is not how it should have been.

I found out later that there had been a sign on my hospital room door. It was a picture of a leaf with a drop of water sliding from it. It was a symbol to the staff that a family was in grieving. I didn’t notice that there was absolutely no noise outside of my room, even though I was on the maternity ward.

One week after the death of my son I had an appointment with my psychiatrist. I could always count on at least a two-hour wait to be seen so I flipped through magazines. Halfway through the long wait my milk came in and soaked the front of my shirt. There I sat, in a waiting room full of people, with a milk-soaked shirt. Sobbing and hugging myself I left the office and never returned. How could life be so cruel? I went downstairs to where my boyfriend was waiting and no words had to be spoken. He took one look at my face and my shirt and wrapped his arms around me. I felt like my feet were in cement because I was trying to move past the grief but every time I turned around there was something else to knock me down.

In order for a funeral home to become involved we needed a death certificate. But you can’t have, we found out, a death certificate without a birth certificate. A fetus less than 20 weeks old is not issued a birth certificate. “But he survived for five minutes” I screamed at the records clerk. “He was a LIVE birth.” After several minutes of screaming at this poor woman on the other end of the phone she finally understood that Alexander should have a birth certificate and a death certificate. To add even more pain to the whole situation, because my divorce had not been final for more than six months, the records department was adamant about listing my ex-husband as the father. This started the screaming all over again. Once it occurred to her that the fetus was, by the way, less than twenty weeks old Alexander’s father was named.

We had my little boy cremated and two weeks after his death we held a memorial service. Two weeks after that we returned Alexander to the earth on a piece of private property and named it “Alexander’s Place”. In the eleven years since his death I have visited that spot less than a handful of times. Alexander’s paternal grandparents tend to it for me.

Somehow I managed to crawl through the days without medication, grieving unbelievably and trying desperately to make sense of everything. I hurt so dreadfully on the inside, and because there are no guidebooks on how to grieve, I hurt myself on the outside. I would sit for hours banging my head on the wall trying to turn everything right side up but everything stayed upside down and I soon found myself in the hospital again. I kept asking ‘how do I grieve?’ but there were no answers. Just blinding pain.

I had stopped taking my meds when I found out I was pregnant with Alexander and the first thing the doctor did when I entered the hospital was dope me up. I could not think or talk or function. The pain was deeper than ever.

I tried a second time to end my life and for the third time I was admitted to a different hospital. Even now I’m not sure how, but I somehow managed to check myself out within the first twenty-four hours. So much for the seventy-two hour hold.

Still in the relationship I had no business being in, I found myself pregnant again. I was put on bed-rest but the fear of losing again ran deep. My moods were still all over the map so I focused on having a healthy, full-term baby. Six months into the pregnancy I went into pre-term labor and spent several weeks in the hospital – alone.

It was a long wait, but we succeeded and I had a fourth son.

Hunter came into the world screaming – and he never stopped. I can look back now and pinpoint some of his behaviors that were clues of what was to come.

Hunter didn’t like to be held or put down and he was mostly inconsolable. And he could scream for long periods of time. He didn’t sleep like most newborns do. Although he walked and talked at the ages he should have, his endless amount of energy was exhausting. The fast-paced world of Hunter has never let up.

It wasn’t until Hunter was two that his behavior crossed over the ‘normal’ into the aggressive and hurtful. At first we were told ‘he’s just a boy’, ‘he’ll out grow it’. ‘He needs more structure and discipline’. I bought books about ‘difficult’ children. I bought books about positive disciplining. I read everything I could get my hands on. I researched the Internet and shared our story with anybody who stood still long enough to listen.

When Hunter was two, Connor, six and Matthew, 10, I met a man that would – and did – change my life and the lives of my children. He had a five-year-old son. I no longer had to have supervised visitation with Connor and Matthew so I visited with them frequently.

At this point Hunter had been dismissed from three different daycare centers for violent and aggressive behavior. Something was definitely wrong. I poked and prodded my way into the intermediate school district where they agreed to test Hunter for a learning disability and he failed. Oddly enough this was the test that propelled him into a special education preschool. His violent and aggressive behavior was escalating and he was consistent across the board. School saw the behavior; daycare saw the behavior and we lived the nightmare at home.

Hunter was given a variety of tests over the next few months. He was interviewed by a neuro-psychiatrist and diagnoses started to fly. None of the doctors or healthcare professionals wanted to ‘label’ him. We didn’t either. We just wanted to know what was wrong. The more professionals I talked to the more they started to look at me for possible answers. They knew bipolar was genetic – could this be it? I started researching and reading and everything I read pointed to Hunter being bipolar. He exhibited all the symptoms, the mania and depression. Self-injurious behavior and violent aggressive behavior toward other people and objects. Once he chased me around our apartment with a knife telling me – quite specifically – how he was going to kill me and chop me up.

We had always monitored television, video games, movies and the like. We didn’t want to add fuel to the fire. Where was this kid getting all this information?

Disturbed. Is that what we are? I hear that term directed toward mentally ill people and it makes my blood boil. We are NOT disturbed. Imbalanced maybe, but not disturbed. The chemicals in our brain do not ebb and flow as they should and that causes us deep inner turmoil. The chemical imbalance causes bizarre events in my body. There are certain things – emotions, for instance – that I am unable to regulate or control. Unfortunately this aspect of mental illness can cause an immense amount of pain. Not only to others, but also to myself. There are so many facets to this disease that I do not understand. In an instance a range of emotions so deep replaces mania and it’s so all consuming that I am not able to function. I am uncontainable and breathless and grasping for something solid to keep from drowning.

I have tried drowning myself three times so far. I say that as a statement because I know, I KNOW, that there is a possibility I will try again. Drowning. Suicide. Death. Peace. It is all the same to me. I decided long ago that I want to be in control of my own demise. I make it sound so simple – my fixation on ending my life on my terms.

As a pre-teen, I found lies to be the best defense against others and myself. If I lied or stretched the truth it caused a detour around me. They became layers and the more I piled on the deeper I was hidden and the deeper I was hidden the safer I felt because no one could get close to me and the secrets I kept. I sought acceptance on a level I should not have been competing on from people I should have never known. Unfortunately the layers I hid under did not protect me from an insatiable need to belong. Nor did the layers protect me from myself. I always say that Hunter is a square child trying to fit into a round world, but that is true for me, too. I have never felt like I belong here.

I look at my children in disbelief. They are literally a part of me, an extension of physical attributes, yet I do not know them. Then I ask myself how is it that I don’t know them? I try to view me as my mother may have and try to understand all the emotions that my children evoke from me and wonder if I am feeling what my mother and father felt. What was their perception of me? I feel the need to tell my children everything I feel about them – all the good stuff because it’s more than just love and pride and respect. I want them to know it really is okay to express emotion, good or bad. I want them to feel. More than anything I want them to feel like they belong.

Waking up from all the lies was a long process. I first had to shed all the layers and allow myself to become vulnerable, something I don’t do very well. I had to leave what had become a comfort zone. The lies had stopped long ago but the layers remained. The secrets were revealed but never discussed. I am not sure if the topics are deliberately sidestepped or if they are simply misunderstood. I had to stop the chaos – self-created and otherwise. Chaos was comfortable to me for so many reasons. For one it was something I had always known. From moving and changing jobs and marriage then divorce – chaos was my life. I wasn’t comfortable with silence or tolerance things had to be completely out of control for me to keep moving.

Hunter is so much like his father (my ex husband) it frightens me. Henry and I receive no support from him when Hunter spins out of control. It’s up to Henry and me to calm the rage boiling over in this child. Up to now I haven’t mentioned that Hunter is medicated and the medication seems to have leveled him off. For now. Growth and hormones will eventually throw him off balance again, but for now he’s stable. I wish I could say as much for me.

I feel like I’m walking through a mine field and that at any second I could lose my balance and explode. What will I do then?