What Light?

For several weeks now I have been carrying around a bundle of darkness ~ and I don't know why.

I do know, however, that it is a deeply, volcanic, hissing ball of emotions that currently have me paralyzed because I am too afraid to confront them. I'm afraid because I have no idea the vast array of emotions that are lying just beneath the surface of me.

I know it's not healthy to walk around feeling this way ~ but I also know it's not healthy for me to even go there because I will most certainly be swept away by the lava.

Actually, that's not true. I do know why I am lugging this enormous weight around ~ I can't deal with the ultimate confrontation that will certainly come from me dropping it into the sea.

Sigh...

The Other Shoe?

When Henry and I began the journey of Hunter more than 10 years ago ~ yes, it's really been THAT long ~ we could only pray and hope (and throw salt over our shoulder) that the actions of his frustrated rage would never involve the authorities. Unfortunately, in the past month, it has. Not once ~ but twice.

The first incident involved a glass chalkboard in his classroom and Hunter sliding a desk into it; shattering it to pieces. The second incident involved him assaulting his teacher. Charges have been filed, police reports have been written and filed and now we are at the mercy of the prosecutor and what he decides to do. The thought of Hunter, at twelve years of age, going in front of a judge on these charges, puts a huge lump in my gut that I haven't been able to shake since this all began.

Do I disagree with the charges? No, I don't. Do I think the police should have been involved? No, I don't. What do I hope comes out of all this? I have absolutely NO idea. See, I've never been down this road with Hunter before. It's foreign territory and it seems to put him in the role of an adult facing charges instead of a pre-teenager.

It hasn't registered with Hunter (and probably never will) the amount of trouble he's in. The disconnect in his brain doesn't allow him to bridge that gap.

Asperger's/Bipolar is not an excuse for his behavior and I agree there should be consequences for his actions. I'm just not so sure doing it in a legal arena is the right place to be.

The...other...shoe...has...dropped.

Thyroid Ultrasound

The thyroid ultrasound I had on Monday pretty much confirmed what we already knew (parathyroid glands) and possibly what was suspected (thyroid). We won't know the official results of the ultrasound for three to five business days.

I am starting to really loathe that timeframe "three to five business days" for this, that, and the other. It's driving me crazy.

Health Update ~ Emotions

Walking into the endocrinologists office today, Henry and I were expecting to find out which parathyroid gland was flipping out and to hopefully schedule surgery to have it removed. While we did find out which gland is causing all these problems and where it is located (lower left), we could not be given a date for surgery because the endocrinologist managing my healthcare does not perform them.

Instead, I had to contact a separate office to schedule a surgical consult for June 1st. Which was the earliest I could be seen. So we still do not have a date for surgery and I have to wait an additional 24 days to even get to the point of scheduling one.

What Henry and I were NOT expecting was finding out that the 24-hour urine test and the newest set of labs, requested by the endocrinologist, have turned up yet another health issue: Hashimoto's Disease.

In the span of maybe ten minutes it was confirmed that I would need minimally invasive surgery to remove the screwed up parathyroid gland and that there was a chance I might have to have a second surgery, with a much larger scar, if the surgeon was not able to locate it on the first attempt. I also heard Hashimoto's disease and the need for an ultrasound (scheduled for Monday, May 11th).

My head was spinning and I essentially shut down. My brain was having great difficulty processing the information just given to us and there was absolutely no way I could handle any additional input at that time. When we finally left the endocrinologist's office the only thought roaming through my head was "I cannot possibly handle finding out about me having another serious health issue".

Our ride to a restaurant for lunch was pretty quiet because both of us are frustrated at a process that is moving too slow in solving these problems and yet, at the same time, we know there is nothing we can do to speed it up.

During the ride several thoughts occurred to me.

  • I was wondering if having the VNS installed was a mistake and if all of my depression symptoms were related to my parathyroid and thyroid glands.
    I want to know if that one final piece of clarity needed in my brain -- essentially the last leg of the journey of Coming Into the Light -- will be solved by curing the hyperparathyroidism and treating the Hashimoto's Disease.
  • I know exactly when the fog in my brain was lifted, where I was and what I was doing at the time. I know what that one moment of clarity looks like, feels like and tastes like because I've had it once before. Unfortunately, that sense of piece was very short-lived.It was March 2007. Henry and I were on a chairlift at our local snowboard area and vividly recall turning to him and saying "I feel good. My brain is clear, my thoughts are clear, everything seems so much brighter."

See, up to that moment I was living my life in shades of gray. The world around me was so dull and lifeless that when that moment hit me it was as though somebody had turned on a great big spotlight and pointed it directly at the world around me.

Two weeks later, at one of our most favorite snowboarding resorts, I fell and broke my elbow. Sitting here now, and looking back over the two years since then, I can say with almost absolute certainty that that is where I began falling apart all over again. Physically, mentally and emotionally.

Could it be that my fractured elbow two years ago was the beginning of the serious health issues I am experiencing now? Could it be that my broken nose in May 2008 accelerated the downward spiral and that my broken foot almost four months ago was the screaming and rattling wake-up call I needed to be a lot more attentive to my physical health?

Is my current depression, fatigue, memory problems, mood swings, sleep disturbances, irritability, and muscle aches attributable to something other than the lack of chemicals in my brain?

These are just a few of the many symptoms of hyperparathyroidism, hypercalcemia, and Hashimoto's Disease that I am experiencing and I've been blaming it on the chemical imbalance (BiPolar) in my brain.

I feel like a burden to my family. I feel as though I've let my husband down; something I seem to be inadvertently doing a lot of lately. I am sick and tired of being "sick and tired".

Right now I feel like death waiting to happen. Except if it comes, it won't be by my own hand. It will be by something I have absolutely no control over.

Isn't it ironic?

Health Update ~ Nuts and Bolts

To bring everyone up to speed I broke my left foot on January 25th. The ER doc called the fractures "funky" and referred me to a Podiatrist.

After 8 weeks of casts, and absolutely zero signs of healing, my foot doc scheduled surgery for March 19th to install a plate and six screws. I immediately went to my personal physician and asked her to do a complete blood work up -- which is how we discovered my parathyroid glands are master overachievers. Not only was my parathyroid hormone level through the roof but so was my blood calcium level.

Until today I have been dealing with three diagnoses: fractured foot, 'hyperparathyroidism' and 'hypercalcemia'. The only way to correct hyperparathyroidism is via surgery to remove the gland that is causing the hypercalcemia.

These two conditions -- Hyperparathyroidism and Hypercalcemia -- kind of go hand-in-hand; the former causing the latter. In my case, these conditions are severe enough to cause me to have either a heart attack or complete heart failure.

Last week I visited the Nuclear Medicine department where they performed several scans of my parathyroid glands. Today I learned the results of those scans from my endocrinologist and it appears that only one of the four glands is affected and a surgical consult has been scheduled for June 1st. Hopefully surgery will be scheduled shortly after that. So far I was hearing everything I expected to hear from the endocrinologist.

What I had not planned on was hearing that I may have to have two surgeries to remove the messed-up parathyroid gland. The first surgery will be "minimally invasive" (outpatient, local anesthetic, very small incision on my neck.) I also was not expecting the doc to tell me there was a high probability that they would have to do a second, invasive surgery (under general anesthesia, large incision), to remove it.

At that point I'm thinking, "WTF. Why not." Then it gets better.

The last set of blood work the endocrinologist ordered shows that my immune system is attacking my thyroid (not parathyroid - although named similarly, they have nothing to do with the functions of the other) -- a condition called Hashimoto's Disease (an autoimmune disease). What this means is my immune system is essentially eating my thyroid gland and will continue to do so until there is nothing left of it.

[Note: The thyroid helps set the rate of metabolism - the rate at which the body uses energy. Hashimoto’s Disease prevents the gland from producing enough thyroid hormones for the body to work correctly.]

Thankfully Hashimoto's Disease can be helped with synthetic thyroid hormone replacement therapy. An ultrasound of my thyroid gland has been scheduled for Monday, May 11th to determine its size.

In two years I have broken three bones (elbow, nose, foot) and, so far, have had two surgeries (nose and foot). Soon I will be having a third surgery.

Possibly a fourth.

Does it get any better than this? (That's a rhetorical question, by the way.)

Caught in the Act!

I still turn heads.

I love that I do.

Especially when it's the head of a sexy-as-hell man.

Today I had to giggle when I caught this sexy-as-hell, sharp-dressed man in a suit and tie checking out (quite intently I might add!) my backside. The compliments that preceded the look totally made my day.

I sure hope your back starts feeling better soon. :-)

25 Years Ago, May 4th

I was given a flower and a note by someone that meant a great deal to me. That still means a great deal to me and because of that, I put that flower and its accompanying note into a scrapbook for future reference.

Recently I pulled that scrapbook out and flipped through the pages that were representative of my junior and senior years of high school. As I turned page after page I realized that, although my scrapbook contained many, many things -- including that flower and note -- the one thing it did not, could not, contain were the range of emotions I felt during that period of time.

The passion of being deeply in love with the man who gave me that flower and that handwritten note. The sensation of having become pregnant by him, and, in the blink of an eye, the heartbreaking way the baby was lost.

I have so many unanswered questions, that have been simmering inside of me, for 25 years. I desperately need closure where I am almost certain there will be none.

The myriad of emotions that cannot be contained in that scrapbook are now written all over my face...and represented in the tears sliding down my cheeks.

Just one more day, one more chance, one more opportunity to be...

My Birthday

My dad forgot my birthday. Again. It has now become sort of a running joke between us. Except this year, I'm not finding it very funny.

Not even close.

Add to his forgetfulness the fact that Matthew and Connor didn't wish me a happy birthday either and I'm feeling downright invisible.

Again.

Hunter & Carrie Meds Update

Hunter and I saw our Psychiatrist today and here is a list of our current meds:

~ Hunter's Current Meds ~
  • Abilify - 20mg, every morning
  • Concerta - 36mg, every morning
  • Concerta - 27mg, every noon

It appears Hunter is falling apart more in the afternoons, after lunch, than he is in the morning so a second, smaller, dose of Concerta was added.

I managed to hustle around today after our doctor appointment's to get the Concerta 27mg prescription filled so he could start taking that at lunchtime today. What a difference!

Not only did he score a 100% for the day but when I let him know a little while ago it was time for shower there was zero argument! In fact, only seconds passed before I heard the shower come on. WOW!

~ Carrie's Current Meds ~

  • Abilify - 5mg, bedtime
  • Adderall - 20mg, four times per day
  • Cymbalta - 60mg, bedtime
  • Lithium - 450mg, bedtime
  • Trazodone - 200mg, bedtime (for insomnia)
  • Plus the Vagus Nerve Stimulator

I also take Lasix - 20mg for hypercalcemia.

The only change made to my meds today was to the Abilify. For the past three months I have been taking 2mg of Abilify at bedtime but the highs and lows of my mood are pretty tightly spaced (rapid cycling) so we bumped it up a notch.

Let's see how the next month goes for Hunter and me.

Another Birthday ~ May 4th

Tomorrow is my 42nd birthday and I'm not nearly as freaked out about it as I was the last two. Actually, that's not true. I am freaked out in the way that my heart could stop beating at any time and I'm only 42 years old.

Mmmmkay...

I think I will go to bed now.

Interim ~ by Edna St. Vincent Millay

The room is full of you! -- As I came in
And closed the door behind me, all at once
A something in the air, intangible,
Yet stiff with meaning, struck my senses sick! --
Sharp, unfamiliar odors have destroyed
Each other room's dear personality.

The heavy scent of damp, funereal flowers, --
The very essence, hush-distilled, of Death --
Has strangled that habitual breath of home
Whose expiration leaves all houses dead;
And wheresoe'er I look is hideous change.
Save here.

Here 'twas as if a weed-choked gate
Had opened at my touch, and I had stepped
Into some long-forgot, enchanted, strange,
Sweet garden of a thousand years ago
And suddenly thought, "I have been here before!"

You are not here.
I know that you are gone,
And will not ever enter here again.
And yet it seems to me, if I should speak,
Your silent step must wake across the hall;
If I should turn my head, that your sweet eyes
Would kiss me from the door. -- So short a time
To teach my life its transposition to
This difficult and unaccustomed key!

The room is as you left it; your last touch --
A thoughtless pressure, knowing not itself
As saintly -- hallows now each simple thing;
Hallows and glorifies, and glows between
The dust's grey fingers like a shielded light.

There is your book, just as you laid it down,
Face to the table, -- I cannot believe
That you are gone! -- Just then it seemed to me
You must be here. I almost laughed to think
How like reality the dream had been;
Yet knew before I laughed, and so was still.
That book, outspread, just as you laid it down!
Perhaps you thought, "I wonder what comes next,
And whether this or this will be the end";
So rose, and left it, thinking to return.

Perhaps that chair, when you arose and passed
Out of the room, rocked silently a while
Ere it again was still. When you were gone
Forever from the room, perhaps that chair,
Stirred by your movement, rocked a little while,
Silently, to and fro. . .

And here are the last words your fingers wrote,
Scrawled in broad characters across a page
In this brown book I gave you. Here your hand,
Guiding your rapid pen, moved up and down.
Here with a looping knot you crossed a "t",
And here another like it, just beyond
These two eccentric "e's". You were so small,
And wrote so brave a hand!
How strange it seems
That of all words these are the words you chose!
And yet a simple choice; you did not know
You would not write again. If you had known --
But then, it does not matter, -- and indeed
If you had known there was so little time
You would have dropped your pen and come to me
And this page would be empty, and some phrase
Other than this would hold my wonder now.
Yet, since you could not know, and it befell
That these are the last words your fingers wrote,
There is a dignity some might not see
In this, "I picked the first sweet-pea to-day."

To-day! Was there an opening bud beside it
You left until to-morrow? -- O my love,
The things that withered, -- and you came not back!
That day you filled this circle of my arms
That now is empty. (O my empty life!)
That day -- that day you picked the first sweet-pea, --
And brought it in to show me! I recall
With terrible distinctness how the smell
Of your cool gardens drifted in with you.
I know, you held it up for me to see
And flushed because I looked not at the flower,
But at your face; and when behind my look
You saw such unmistakable intent
You laughed and brushed your flower against my lips.
(You were the fairest thing God ever made,I think.)

And then your hands above my heart
Drew down its stem into a fastening,
And while your head was bent I kissed your hair.
I wonder if you knew. (Beloved hands!
Somehow I cannot seem to see them still.
Somehow I cannot seem to see the dust
In your bright hair.)

What is the need of Heaven
When earth can be so sweet? -- If only God
Had let us love, -- and show the world the way!
Strange cancellings must ink th' eternal books
When love-crossed-out will bring the answer right!

That first sweet-pea! I wonder where it is.
It seems to me I laid it down somewhere,
And yet, -- I am not sure. I am not sure,
Even, if it was white or pink; for then
'Twas much like any other flower to me,
Save that it was the first. I did not know,
Then, that it was the last. If I had known --
But then, it does not matter. Strange how few,
After all's said and done, the things that are
Of moment. Few indeed! When I can make
Of ten small words a rope to hang the world!

"I had you and I have you now no more."
There, there it dangles, -- where's the little truth
That can for long keep footing under that
When its slack syllables tighten to a thought?
Here, let me write it down! I wish to see
Just how a thing like that will look on paper!

"*I had you and I have you now no more*."

O little words, how can you run so straight
Across the page, beneath the weight you bear?
How can you fall apart, whom such a theme
Has bound together, and hereafter aid
In trivial expression, that have been
So hideously dignified? -- Would God
That tearing you apart would tear the thread
I strung you on! Would God -- O God, my mind
Stretches asunder on this merciless rack
Of imagery! O, let me sleep a while!

Would I could sleep, and wake to find me back
In that sweet summer afternoon with you.

Summer? 'Tis summer still by the calendar!
How easily could God, if He so willed,
Set back the world a little turn or two!
Correct its griefs, and bring its joys again!
We were so wholly one I had not thought
That we could die apart. I had not thought
That I could move, -- and you be stiff and still!
That I could speak, -- and you perforce be dumb!
I think our heart-strings were, like warp and woof
In some firm fabric, woven in and out;

Your golden filaments in fair design
Across my duller fibre. And to-day
The shining strip is rent; the exquisite
Fine pattern is destroyed; part of your heart
Aches in my breast; part of my heart lies chilled
In the damp earth with you. I have been torn
In two, and suffer for the rest of me.

What is my life to me? And what am I
To life, -- a ship whose star has guttered out?
A Fear that in the deep night starts awake
Perpetually, to find its senses strained
Against the taut strings of the quivering air,
Awaiting the return of some dread chord?

Dark, Dark, is all I find for metaphor;
All else were contrast, -- save that contrast's wall
Is down, and all opposed things flow together
Into a vast monotony, where
day, and frost and thaw, and death and life,
Are synonyms. What now -- what now to me
Are all the jabbering birds and foolish flowers
That clutter up the world? You were my song!
Now, let discord scream! You were my flower!
Now let the world grow weeds! For I shall not
Plant things above your grave -- (the common balm
Of the conventional woe for its own wound!)

Amid sensations rendered negative
By your elimination stands to-day,
Certain, unmixed, the element of grief;
I sorrow; and I shall not mock my truth
With travesties of suffering, nor seek
To effigy its incorporeal bulk
In little wry-faced images of woe.

I cannot call you back; and I desire
No utterance of my immaterial voice.
I cannot even turn my face this way
Or that, and say, "My face is turned to you";
I know not where you are, I do not know
If Heaven hold you or if earth transmute,
Body and soul, you into earth again;
But this I know: -- not for one second's space
Shall I insult my sight with visionings
Such as the credulous crowd so eager-eyed
Beholds, self-conjured, in the empty air.

Let the world wail! Let drip its easy tears!
My sorrow shall be dumb! -- What do I say?
God! God! -- God pity me! Am I gone mad
That I should spit upon a rosary?
Am I become so shrunken? Would to God
I too might feel that frenzied faith whose touch
Makes temporal the most enduring grief;
Though it must walk a while, as is its wont,
With wild lamenting! Would I too might weep
Where weeps the world and hangs its piteous wreaths
For its new dead! Not Truth, but Faith, it is
That keeps the world alive. If all at once
Faith were to slacken, -- that unconscious faith
Which must, I know, yet be the corner-stone
Of all believing, -- birds now flying fearless
Across would drop in terror to the earth;
Fishes would drown; and the all-governing reins
Would tangle in the frantic hands of God
And the worlds gallop headlong to destruction!

O God, I see it now, and my sick brain
Staggers and swoons! How often over me
Flashes this breathlessness of sudden sight
In which I see the universe unrolled
Before me like a scroll and read thereon
Chaos and Doom, where helpless planets whirl
Dizzily round and round and round and round,
Like tops across a table, gathering speed
With every spin, to waver on the edge
One instant -- looking over -- and the next
To shudder and lurch forward out of sight --

* * * * *

Ah, I am worn out -- I am wearied out --
It is too much -- I am but flesh and blood,
And I must sleep. Though you were dead again,
I am but flesh and blood and I must sleep.

Certified Medical Assistant!

I finally received the results of my certification exam. When they tell you to expect your test results in 12 weeks, they are NOT kidding!

I scored in the 94 percentile overall.

I can now sign my name in charts as "Carrie, CMA (AAMA)".

Yeah, I rock!

Health Issues

We are going into month four of health issues and it appears we may have one of the four on the road to healing. The four health issues I am dealing with are:

  • Hypercalcemia (caused by...)
  • Hyperparathyroidism (preventing my...)
  • Broken left foot from healing properly (which has, indirectly, caused injury to my...)
  • Left elbow

This past Tuesday the foot doc gave me the nod for putting 50% of my weight on my left foot AND no more casts! It appears the plate and six screws holding my fifth metatarsal together are doing their job!

The hypercalcemia (too much blood calcium) has me a lot freaked out because the overabundance of blood calcium can cause a heart attack or the heart to fail altogether.

I feel like a partially mobile time-bomb...

Funerals

The mother of my best childhood friend passed away last week and as I was sitting at Ms. Marceil's (who was also my dance teacher) funeral last weekend, something occurred to me. When people cry at funeral's, are they crying for the currently deceased? Or are they crying for every loss and every heartache they themselves have ever known?

Me?

All of the above...