I spent some time with my dad this past weekend and I am in pure disbelief at how quickly Myasthenia Gravis has grabbed hold of him. When I first found out about his diagnosis, and knowing nothing at all about it, I went to the internet to read up on it. The majority of the white papers and clinical studies I found indicated it was not a terminal disease.
I beg to differ.
Over the past seven months I have watched my 6'4" dad lose his ability to walk unassisted. His eyesight has reached a point where he is having to set aside one of his beloved hobbies: reading James Patterson novels. He has been unable to drive and has not driven a vehicle in more than a year.
This last weekend I noticed that while he is talking his face would become bright red. Bright crimson red. I found out that, because it takes so much of what energy he does have, his ability and effort to carry on a simple conversation uses all his strength.
While my dad was talking with me about the effect MG is having on his eyesight, my step mom, who was sitting off to the side where my dad could not see her, mouthed the word '♥' as she pointed to her own chest.
I am not quite sure what the meant by that gesture and I dont think I want to know.
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