Showing posts with label Parathyroid. Show all posts
Showing posts with label Parathyroid. Show all posts

Friday, July 6, 2018

Nervously Terrified

I am currently in the waiting room of an imaging department waiting to be called back for a CAT scan. Two CAT scans actually. The first scan is of my sinuses, no worries there, and the second, an abdominal scan, is focused on my pancreas. BIG anxiety there. HUGE anxiety.

The reason for the pancreatic CAT scan came about from an incidental finding on an abdominal ultrasound I had not too long ago. Which is a good thing, I think, based on people in my immediate family having pancreatic related diseases. Diabetes. And cancer.

Pancreatic cancer.

Yes, I'm a little ruffled right now. (And nauseous from drinking this barium contrast).

Yesterday, as if these CAT scans weren't stressful enough, the press can bloodwork I had to have pre-scan shows my serum calcium level is seriously elevated AGAIN as is the parathyroid hormone. I have already had 2/4 parathyroid glands removed, what next?

Seriously?

Tuesday, November 21, 2017

Scheduled

The month of December will be a busy month for me - unfortunately not because of the holidays.
All of the pre-op appointments have been scheduled, post-op too.

I am going into this surgery scared witless. Yes, I know, I freak out with EVERY surgery I've ever had in the past, I stay up all night when a surgery is scheduled the next morning.  This one is different because when the surgeon makes the initial cut, there are way too many "If this, Then That". There are just too many variables - which, in MY memory at least, has never happened before now.

On top of all THAT, my surgeries go from simple to, "OMG, Carrie, your skin looks green, did you know that?!"  I was anemic from what should have been a straight forward hysterectomy as an outpatient, to having to stay a couple days because of complications.

Waking up from anesthesia, and my dad was there with me, to something's not right here. It took me longer than it should have to come out of anesthesia and, when I finally did, the look on my dad's face - between very scared to relieved - spoke volumes.

Monday, October 2, 2017

Surgical Consult

I saw the Endocrinology Surgeon today for consult regarding the second parathyroidectomy I need. I learned a LOT.

The Endocrinologist I saw last month had ordered a thyroid ultrasound and the results show I have a couple of tumors there and they are small enough to not need surgery (or worry) however, repeat ultrasounds will happen at regular intervals to make certain they don't increase in size.

Having said that, the ultrasound the surgeon performed today shows that one of my parathyroid glands has attached itself to my thyroid. Because nothing is ever simple when it comes to my health, the surgeon told me this happens in less than 5% of people with hyperparathyroidism.

The next step is to have a laryngoscopy in order to check my vocal cords in an effort to find out why I have had so much difficulty swallowing the past several months and whether or not it is related to my hyperparathyroidism or thyroid. 

Due to the vagus nerve stimulator in my chest I am unable to have MRIs so I will be scheduled for a 4D CT scan as well as a Sestambi scan. The surgeon explained that these imagings, combined, may show which parathyroid gland(s) is bad. The surgeon went on to explain that until he is able to see the parathyroid and thyroid glands in surgery, he doesn't rely on the test results alone.

The surgeon was unable to locate the other two parathyroid glands.

Saturday, September 23, 2017

Waiting

...for the results of the thyroid ultrasound I had last week.

As expected, my labs are so far outside the normal ranges. I am already having surgery to find the remaining parathyroid gland that is causing some, or all, of the trouble. There could be one gland, or three; the fourth was removed a few years ago.

I am now wondering if the thyroid gland will need to be removed? Could it be the Hashimoto's Disease, an immune disorder of the thyroid, is also causing me to feel so awful? My immune system has been attacking my thyroid for years.

Wait.
And
See.

Tuesday, July 4, 2017

Sharpness

A few months ago I was drawn to sharp objects in order to hurt myself - knives, scissors, even a comb. All of which were completely dull, as I disappointingly discovered, I was still able to scar my skin.

I now own three of the sharpest kitchen knives ever known to man and I find all of them completely terrifying.

Recently I placed my first order with a company by the name of Home Chef and was delivered all the ingredients needed, including spices, sauces, fresh vegetables and fruit, to make three dinners for two people. Which, because I am only cooking for myself, is actually three dinners and three lunches. I had forgotten all about how much I loved cooking - that didn't come from a box - before kids.

A few months ago I was buying a bed at Ikea and found a set of three knives; butcher, paring and bread. Since then, the knives, still packaged, were laying between my kitchen faucet and the back splash. They needed to be washed, yet I had no reason to use any of them so there they stayed. Until my first delivery from Home Chef. I finally had a reason to wash and use them. Quite a frightening ordeal. It took me forever to chop up all the vegetables because I knew one accidental slip of the knife and I would lose a finger. At least.

It may seem silly to some that I had such difficulty with these knives because my love of cooking had made me pretty adept at using them properly and safely.  What nobody knows though is that I have tremors. And the tremors in my hands are more pronounced than tremors in other parts of my body.
As of this writing my doctor has yet to figure out what is causing my tremors. While I am not a physician, I have personally ruled out medications I take, and have been taking for years - way before the shaking started. 

My physician discovered my Vitamin B-12 deficiency, which causes, in part, overwhelming fatigue and tiredness. Now she has me do self-injections of Vitamin B-12 once per week. Like me, my new physician is also wondering why my past physicians have never revisited the high serum (blood) calcium (hypercalcemia) or high parathyroid hormone (hyperparathyroidism) - especially when the numbers of both have stayed elevated - including immediately after one parathyroid was removed. 

Years later, the level continues to stay at +/- 0.1. I can still remember each past physician, including the endocrinologist who treated me by having one of the parathyroid glands removed, using the "Wait and See" approach. Well, I waited. And waited. And waited. While unbeknownst to me, my bones were softening.

Speaking of tremors, one of my former patient's, Sam, was in his mid-seventies and had been diagnosed a few years earlier with Parkinson's. Sam stopped in the office with his wife once a week for a blood draw to check his blood clotting factors (PT/INR). Each time I was setting up for the draw and prepping his arm, he would apologize to me for his arm shaking, which he had no control of, and every time I would tell him that he didn't have to apologize. Thankfully, I never missed his vein.

Then, one day, as I was drawing Sam's blood, the tremors were much worse than usual and, as was Sam, he was apologizing to me for it. Instead of telling him not to apologize, I said to him, "Sam, I would bet you make the meanest Martini!". Then Sam, his wife and I said, in unison, "Shaken, not stirred!" Sam and his wife left the office that day still laughing about it. After that, the three of us, would try to come up with other things Sam might come out of retirement to do, like shaking paint cans, margarita's, dancing lessons, etc. Sam and his wife were both favorite patients of mine and I often wonder how they are doing.

Now, when I use these very sharp knives, or any task requiring fine motor skills, and my hands are shaking out of control, I think of Sam and his tremors - and his laughter. I was able to make Sam laugh about a condition he has no control over. Literally.

In return, Sam has given me something I never knew I would have a similar need for; laughter at myself.

"Shaken, not stirred!"

Thanks, Sam.

Sunday, June 28, 2009

Parathyroidectomy Completed!

This surgery was originally scheduled for June 16th but due to an infection inside my left foot, from having hardware removed, it was postponed for one week.

In order for the surgeon to better see the wonky parathyroid gland, I had to arrive at the hospital much earlier than a typical same-day patient to have radioactive material injected into my veins. It seems parathyroid glands are pretty picky about what they snuggle up to, and due to their deep and loving relationship with radioactive materials, it causes the glands to sparkle and shine.

The hospital where the surgery took place was pretty cool. (I feel I am expert in judging hospitals since this would be my third surgery in 3 months.) Their same-day surgery area was its own wing, with two beds per room -- and a door, not a curtain, that closed!

The surgery itself took almost three hours and after two hours in the recovery room I was returned to the same-day surgery unit to order room-service, watch television and sleep. Which, after I ate, is all I did for the next 18 hours.

All is well.


Wednesday, June 3, 2009

'Twas the Night...

...before surgery and all through the house...

Actually, tomorrows' surgery will be a piece of cake compared to the surgery I have coming up on June 16th.

Tomorrow, the Foot Wizard will be removing the hardware he inserted almost (exactly) three months ago to help the broken bones heal. Ever since the last cast came off and I was able to use the CAM boot and put some weight on my formerly broken foot, the screws have bothered me terribly when walking. It feels as though, with every step, they will protrude through the bottom of my foot.

I am back to wearing my Skecher's and Fagawi's and I could not be more thrilled!

Returning to work is NOT far behind.

The surgery taking place on the 16th is has a lot more risks involved. In the process of removing my parathyroid glands, for instance, my vocal cords could become temporarily or permanently paralyzed. How is that for a wake me up? Although I am certain there are a few people on this earth that probably wouldn't mind never hearing my voice again, it kind of freaks me out.

A lot.